My name is Alison Thompson and I was diagnosed with breast cancer five years ago.  To give you some background, my mother was diagnosed with breast cancer about 15 years ago.  Her cancer was an aggressive form. It spread to her spine and brain, and she passed away about three years after the initial diagnosis. 

I was forty years old, running a successful business, comfortable in my finances, and feeling ready to settle down and start a family. Suddenly, a breast cancer diagnosis upended my sense of contentment and sent me on a journey of chemotherapy, immunotherapy, hormone therapy, a preventative double mastectomy, and, ultimately, reconstructive surgery.

For Andrea Sveinbjornson of Regina, the Canadian Breast Cancer Network’s new SurgeryGuide is an invaluable tool, one that she wishes she had when she had to make decisions about breast surgery in 2016.

In August 2014 I found a lump in my left breast. This is unusual for inflammatory breast cancer (IBC), a rare and very aggressive cancer where cancer blocks the lymph vessels.

We all know how integral surgery is for the treatment of breast cancer. It’s usually the first step in treating early stages of the disease which means it can come quickly after diagnosis. The time when you’re still processing your diagnosis is also the time when you’re making some of the most important decisions about your treatment. Trying to make these decisions while learning this new, complicated language called cancer doesn’t make those decisions any easier.

It was just another typical morning in our house, trying to get my son fed and dressed before I take him to daycare. As I am multitasking, getting myself dressed and making sure my son is actually brushing his teeth, I notice he’s watching me. He’s still trying to process those two large scars across my chest. The incisions are still fresh and slowly healing and turning to scars. Scars that represent where my breasts once were but now is just an empty space. He finally pipes up. “When are your boobies going to grow back, Mommy?” He asks so innocently.

People have known about breast cancer since ancient times.  For most of that time, there were no effective treatments.  However, in the last 120 years, advances in surgical and medical treatments have meant that today, 98 percent of patients with localized breast cancer survive at least five years after diagnosis.  The following timeline shows the development of breast cancer treatments.

At the age of 46, I was diagnosed with stage two/grade three multifocal, invasive lobular and ductal breast cancer. I had found the lump myself after a year of constant infected cysts in my breast. I had been told I had very dense breasts, which is part of the reason the cancer was not visible on a mammogram. I had it confirmed by biopsy and had a right mastectomy followed by four rounds of chemotherapy. Six months later, I chose to have my left breast removed and began reconstruction.

Wendie Hayes of Stoney Creek Mountain, Ontario was diagnosed in 2011 with triple negative metaplastic phyllodes breast cancer at the age of 55 after she discovered a lump in her left breast.  Her cancer is a rare type, affecting less than one percent of breast cancer patients, so it took some time to get the right diagnosis. 

Struggling with body image is an age-old tradition for women. We can be so critical in how we see ourselves. Too fat, too skinny, bad skin, bad hair…every woman has one aspect of their bodies that they do not like or wish they could change. Add getting breast cancer to the mix and all those insecurities get amplified.

In 2003, I was a happily married, active, stay-at-home mom in Calgary, Alberta, where I was born and raised. I was 46 years old and filled my days going to the gym to work out, volunteering at the school and church, and running an active household. My son was 13 and my daughters were 11 and 8 at the time. I felt healthy and not overly stressed.

“Great to see you back to your normal self,” a friend said to me recently. I nodded, and smiled my best fake smile. It’s been three years since my original diagnosis of breast cancer, two years since the end of treatment, and 18 months since my bilateral mastectomy. I've been bald, radiated, sliced, diced and pieced back together. I am strong. I am happy. But I am nowhere near “back to my normal self.”

I found a lump in my left breast by accident in the summer of 2006, shortly after I had turned 40. After a mammogram and biopsy, I was diagnosed with breast cancer. It was multicentric DCIS and quite aggressive. In short, this led to a whirlwind treatment and surgery plan that involved chemo, a bilateral mastectomy, radiation, a hysterectomy and eventually reconstruction surgery.