Two days ago, my lower back seized and then, seemingly stuck. Never have I ever had back problems. Yet, here I am frozen with body-gripping spasms. I can’t roll over in bed, stand up straight or even wipe my bum without yelping loudly. Thank God, and I don’t say this lightly, I was able to call a friend (who suffers from chronic back pain), who called her chiropractor, who graciously booked me in at the end of his appointment-packed day.
The San Antonio Breast Cancer Symposium is the annual breast cancer conference that brings together researchers, clinicians, patients and manufacturers from all over the world to discuss the latest breast cancer research. While the 2020 symposium was held virtually, there was still an incredible amount of new research shared.
While Canada has a universal healthcare system, this system does not universally cover prescription drugs, nor does it address out-pocket-costs that many, including breast cancer patients, face when they navigate our healthcare system. Every country that has a universal healthcare system also has universal prescription drug coverage – every country but Canada. This results in unequal access to treatment based on a variety of factors, such as where a person lives, the type of insurance they have, their age, their income, and more. To address this, many have suggested implementing national pharmacare – a universal drug coverage system that is publicly funded. We’ve written on pharmacare in the past, on what it is and why it should matter to breast cancer patients and on where Canada’s federal parties stand on pharmacare.
2020 was eventful, to say the least. It was a year where many had to shift and pivot from their everyday normal. Appointments were cancelled, surgeries were delayed and rescheduled, and patients found themselves having to access their doctors and healthcare team through a screen. Breast cancer patients had to not only worry about their risk of contracting the COVID-19 virus, but they also had to maintain their cancer care as best they could, something that was a challenge both mentally and physically.
As the year slowly winds down, we look back on some of the many activities and projects that CBCN has participated in, developed, or updated. These efforts reflect our ongoing commitment to that ensure that the voice and perspectives of breast cancer patients are reflected in the work that we do.
October is Breast Cancer Awareness Month and each year, we see a surge of individuals, companies, and organizations joining the conversation to raise awareness of breast cancer. Amid the ongoing COVID-19 pandemic, people and organizations participated in virtual events, used their social media to raise awareness, and donated to various breast cancer organizations.
Recently, after spending eight hours with abdominal pain so intense I was doubled over, I conceded to my sister Liz, who insisted a trip to the hospital was necessary and crawled downstairs, ordered an Uber, pulled a patterned facemask over my nose and mouth and went. Twelve hours, three hits of morphine and one magnetic resonance imaging (MRI) scan of my lower abdominal organs later, the emergency room doctor told me a lesion on the right side of my liver was the culprit. Based on the scans I’d had taken of my major organs prior to my breast cancer surgery, the lesion was new and potentially the result of the original tumor and/or the treatment I’d received post-operation. An ultrasound followed, revealing the lesion’s 5cm length by 5cm depth by 5cm width. A second MRI has been scheduled.
Some breast cancer patients who had a mastectomy have reported feeling painful and non-painful sensations in the area of the breast that was removed. This condition, known as phantom breast syndrome (PBS), usually start in the first year after a mastectomy. Sensations due to PBS usually occur in the chest, armpit, surgical scar, and inner arm and last far beyond the expected time for post-surgical pain. The prevalence of PBS is not exactly known, most likely due to a lack of reporting as patients either feel like it is not that big of a deal or because they find it hard to describe. PBS has been reported to affect anywhere between 4% to 56% patients; other studies report that it affects anywhere between 10% to 55% of women.
I am a 51-year-old woman from the Loire Valley. I live near Orléans, 120 kilometres south of Paris. I grew up surrounded by women. I am the youngest of five sisters; twenty years separate me from my oldest sister and ten years separate me from the fourth one. Our mother received her breast cancer diagnosis in 1985 and at the time, cancer care was awful. My father died from a cardiac arrest in July 1986, probably caused by grief. My mother was brave and fought as much as she could, but she passed away in May of 1989 when I was 20 years old. Because of her breast cancer diagnosis, my sisters and I have closely monitored our risk of developing breast cancer.
When you have a cut or an injury, blood clots are useful in stopping the bleeding in order to help your body heal. However, there can be a negative side to blood clots. If a blood clot develops in a vein, which is called a venous thromboembolism (VTE) or venous thrombosis, or if it develops in a deep vein, which is called a deep vein thrombosis (DVT), there may be cause for concern.
Sex may be something that isn’t frequently discussed by doctors or oncologists or even friends, but the sexual changes and adjustments you go through following a breast cancer diagnosis can be enormous for you and your partner, depending on how big a part it was in your life before diagnosis and treatments.
Lymphedema is abnormal swelling of the arms, hands, breast, or torso. Breast cancer-related lymphedema generally occurs when the lymph nodes or the lymphatic vessels are damaged or removed following breast cancer treatment. When this happens, blockage in the lymphatic system prevents lymph fluid from properly draining which is what leads to the swelling.
The Merriam-Webster dictionary defines ‘advocate’ as a verb that means “to support or argue for”. ‘Self-advocacy is defined as “the action of representing oneself or one's views or interests”. While the word, advocate might make us think of protests or political signs, that is not always the case. As someone with a breast cancer diagnosis, self-advocacy and being an advocate simply means being a part of your health care team. It means knowing yourself and speaking up for yourself to make sure that your cancer care needs are met. Self-advocacy is part of participatory medicine where “patients are actively working alongside their physicians to choose the best course of cancer treatment.”
Before I was diagnosed, I rarely thought about breast cancer. When I did it was once a year, usually in June, as I was planning the line-up of pink-ribbon beauty products I wanted to feature in the upcoming October issue of FASHION, Salon, 29Secrets or whatever other magazine I was working for at the time. Other than that, it just wasn’t on my radar. No disease was really. My inner circle was healthy, well, that is if you didn’t count my mom’s dad dying of liver sclerosis from alcoholism when I was around five or my paternal grandmother passing from Alzheimer’s when I was in my early thirties.
Research on breast cancer, and more specifically, metastatic breast cancer (mBC), is critical in helping us better understand this disease. While widespread knowledge of mBC is still limited, there are studies that look specifically at the detection, prognosis and treatment of this type of breast cancer. Similarly, clinical trials on metastatic breast cancer are crucial in helping researchers improve the current standard of care. Below are some of the latest research and some currently recruiting clinical trials on metastatic breast cancer.
Sugar, in all its stark white, sparkling glory is an enormously popular, widely misunderstood, and a hotly debated topic in the breast cancer world. Rarely a week passes when I don’t hear or read “Sugar feeds breast cancer”, proclaimed with absolute certainty. People accept this declaration as truth, yet I ask; does it really?
I have been struggling with my body image these last 8 weeks. The funny thing is that it’s not with the two scars I have running across my chest. I have actually adapted well to that change, even with my right scar being lumpy and misshapen. What I have been struggling with is my weight gain thanks to Tamoxifen. Without estrogen, my mid-section is taking on the appearance of a barrel. A barrel made of pudding, with an oatmeal crust! Having always been fit and healthy, I am finding myself disturbed by this body morphing of mine.
I worked during my entire breast cancer treatment. I didn’t want to. I had to. I live alone. I don’t have a husband or boyfriend. I pay my bills on time and by myself. Yes, it was a choice, but it was a horrible one.
Want to meet me for a drink? Grab a glass of wine and discuss the day and life in general? In my pre-breast cancer days, I loved my red wine. Whether catching up with a friend or sharing a meal with my husband, a glass (or two) of a robust red was de rigueur. Occasionally I’d sip dry Chardonnay, but those peppery, heavy Zin’s stole my heart. On two separate trips to Europe, wine figured prominently in the itinerary. Visiting Burgundy, France and the Tuscan region of Italy, how could it not? One glorious afternoon in Italy, my husband and I toured an obscure winery. We tasted a variety of wines with a group of folks we’d met at a cooking class earlier that day. Someone suggested this hidden gem, and we eagerly tagged along. We all knew each other only from the few hours we’d cooked pasta together. It’s a memory I’ll treasure forever. In this precious life there are so many simple pleasures to enjoy. A glass of really good wine is one.
When most people picture someone with breast cancer, they often think about women; many are shocked to find out that men can also get breast cancer. While male breast cancer represents less than 1% of all breast cancer cases, it is still a disease that men should be aware of. September is Men’s Cancer Awareness Month and for today’s blog we will be discussing male breast cancer to bring awareness to this disease.