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The Voice of People With Breast Cancer

Education

Our Voices Blog


Tag : breast cancer

We Are Not Counted

I am writing this from my hospital bed. One of many cancer-related hospital stays and visits. This hospital has become my second home. Fortunately, it’s a great hospital. That doesn’t mean I want to spend a lot of time here though. But that is inevitable when you have metastatic breast cancer, otherwise known as mBC. That is Stage IV cancer. Cancer that has travelled outside the breast and has metastasized into other areas of the body. 

Breast Cancer at 36

I had a few benign tumors (Fibroadenomas) that I would check every six months via ultrasound, and I had one lump which was classified as benign and was told it was nothing to worry about. Three months after my last ultrasound, this lump grew very quickly and became painful. I went back for another ultrasound three months earlier than suggested, and it showed the lump was changing and growing extremely fast. I had a biopsy on June 8, 2022.

60 to 0 in Seconds - Being a Breast Cancer Patient

I am a woman. I am active. I am a mom. I am also living with metastatic breast cancer, and I am living well. I have been active all my life. I played a variety of sports ever since I was little, like competitive fastball and hockey. So, how could a super active, fit, and healthy individual, with no breast cancer or any other type of cancer in her family, all of a sudden be told she has stage IV breast cancer?

To the Girl Standing in The Blue Hospital Gown, Part 3

Day 93: January 21, 2022

Alex of Glow Up Wigs helped me with a wig and gave me some extra sparkle. I am overwhelmed with emotion and gratitude. Through my tears you saw my hurt, but you managed to capture my beauty and energy. Alex, you are incredible at what you do. When I look in the mirror now, my smile is bigger. Cancer cannot take that from me. I continue to love and accept every version of myself, and you have given me confidence when I needed it the most.

I Can Create My Reality

I read a lot. About everything, really, including Jackie Collins’ Hollywood Wives, which I’m about three decades late on, I know, but I just watched Lady Boss, The Jackie Collins Story on Netflix so here I am. The book is good too, in a dishy fantastical way, so naturally after 15 pages in I went back online and bought the sequel Hollywood Wives: The New Generation. But, that’s not the kind of reading I want to share. Books about the power of the mind, self-esteem, and mental health and how to create a positive reality are what I’m referring to. I like these types of books and have piles of them, because I honestly believe they work. I just wish I’d fallen back on them when I was initially diagnosed with breast cancer and going through surgery and treatment.

History of the BRCA 1 & 2 Genes

Before it was known that genes could be linked to various cancers, 1970s research focused largely on viruses and their role in the development of cancer. With the knowledge that family history had an impact on cancer risk, Mary-Claire King, an American geneticist, began to theorize possibilities beyond viruses and started her mission in identifying the cause of breast cancer running in families.

Breast Cancer Care for Lesbian and Bisexual Women

Who you are and where you live can greatly impact your access to care, and sexual orientation is no exception to this. Within the healthcare system, the LGBTQ+ community regularly experiences barriers when seeking adequate health services, and the effect of these barriers may result in poorer health outcomes. This leads to the question — does being a lesbian or bisexual woman affect your risk for breast cancer?

I Believe in Love For Endurance and Even, For Survival

I believe in love. Romantic love, yes. More importantly though, love of myself, love of my life and love of life. I’m writing this because love, my true and authentic belief in an all- encompassing love, is what gives me strength and get me through the day. I call it God’s love, but it can be called or seen as a higher power, the universe or whatever else works for you. It’s this that has helped me keep the faith that I would prevail over breast cancer.

Losses from mBC: Vision and Fertility

Five years ago, 2017, I had what I thought would be my last CT scan at the BC Cancer Agency. I was done. I busted out of there as if I was free, even though I had a mild concern about a weird, ongoing burp and GERD symptom. I was told this was anxiety and waited for the results thinking I would graduate from cancer world. This was the assumption from my medical team and something I thought could be true since it had been five and a half years since my early-stage diagnosis. Even though the fear of recurrence existed, I held strong like my oncologist did.

Considering a Mastectomy Tattoo? Here’s What You Need to Know

Following breast cancer surgery, there are a variety of options available to you. You may choose to live flat, have breast reconstruction, get implants, or use breast prostheses. Another option that you may have not considered or known about are mastectomy tattoos. Women who have gotten mastectomy tattoos following their breast cancer treatment have given a variety of reasons for getting them, including that they are a confidence boost following treatment, to cover scars, to create something beautiful, and to mark what they’ve been through.

To the Girl Standing in The Blue Hospital Gown, Part 2

I’m still scared and I’m still nervous, but I’m okay. I’m finding a sense of peace and calmness in all of this chaos. These past 42 days have been life changing. Being diagnosed and the end of a relationship has really tested my ability to find acceptance in everything. I continue to smile and laugh; life is truly incredible. The universe works in ways that I’ll never fully understand and in the darkest moments there is still light to be found.

Podcasts for Peace of Mind

I came to the Podcast game way late, like decades late. So when most people were tuning in on their morning commute to work, I was still listening to the mumbo jumbo in my head instead. Not that there’s anything wrong with this, I’ve always enjoyed my own company and I’m also a bit of a late bloomer which can translate into sometimes being a latecomer, so there’s that. But if I knew then how much I love a good podcast now, I’m fairly confident the time I spent waiting in Princess Margaret Hospital’s air-conditioned rooms would have passed by a lot quicker.

A Quick Guide to Nipple Reconstruction

During a mastectomy or double mastectomy, the nipple is usually removed. One option to remedy this is to have nipple-sparing mastectomy. However, if you are not a candidate for this, you may want to look into whether getting your nipple reconstructed is more ideal for your situation.

Questions and Experts Session Guide: A Genetic Counsellor Answers Questions about Genetics and Genetic Testing

In today’s post, we provide the questions that were sent in and asked during the live session of our Questions and Experts session held in June 2022. In this session, Rachel Mador-House, a certified Genetic Counsellor, answered questions about genetics and genetic testing. In the parentheses, you’ll find the timestamp of where to find the question in the on-demand video.

My Genetic Test Results Changed my Treatment Plans

Stacy Zelazny lives in a tiny town in Ontario, literally, she resides in a little-known place called Tiny, Ontario. Stacy describes herself as a mom of two amazing girls who is married to her best friend and winning the biggest fight of her life.

I’ll Take a Pass on the Cancer Platitudes, Thanks

“Breathe.” “Just breathe.” If I had a dollar for every time someone told me to do this —while I anxiously waited for my biopsy results, had another round of MRI exams, before and after surgery, throughout the months-long treatment and the years I spent swallowing a daily dose of Tamoxifen — I’d have a down payment for a vacation home in Mexico.

To the Girl Standing in The Blue Hospital Gown, Part 1

Well, the results are in.

Take a seat.

Take a deep breath.

It’s positive.

The Four Stages of My Stage Four MBC

One night in July 2015, I went to sleep, and everything was fine. When I woke up, it was obvious that everything was not fine. My left breast was swollen, inflamed and painful. I was shocked and worried but tried not to overreact. Then I started making excuses. Maybe my period was coming. Maybe it was cellulitis. Maybe it was a clogged milk duct. Maybe it was. Maybe it. Maybe …

FinNav Five: Support Items and Packages

To highlight the various types of programs listed in FinancialNavigator, we have put together this blogpost series, FinNav 5. In this post, we highlight five programs that provide prostheses, wigs, and other care support items and packages.

Your Surviving-Tamoxifen Checklist. All the Things You Didn’t Know You Needed, But Do

Nothing can prepare you for the onslaught of side effects the tiny little hormone-blocking drug Tamoxifen can create in your body and your life. At least that’s how I feel…now. When my oncologist first handed me the five-year prescription for the 10-mg daily dose along with a pamphlet listing 40-odd side effects, I thought differently. Then, my oncologist explained how Tamoxifen works and what I may experience—including hot flashes, weight gain and irregular periods—in such an airy, breezy way that took, maybe, all of 45 seconds to share I figured, okay, I’ve got this. This’ll be no big deal. If there was anything to worry about my doctor would warn me. Thousands of women pop this pill every single day without complaint, I’ll be fine.