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The Voice of People With Breast Cancer

Education

Our Voices Blog


Contributor : CBCN Team

The importance of having access to financial resources

We asked Tricia, a member of our patient advisory committee, to share her thoughts on our newest digital tool, the FinancialNavigator, designed to help connect patients with financial resources in their community. Here’s what she had to say.

How can we ease the financial burden of breast cancer?

When you are first told you have breast cancer, your thoughts can immediately turn to your mortality and how to best save your life. You worry about how your diagnosis will affect your family, spouse or kids. More and more, the realities of the disease begin to set in and the impact it can have on your finances becomes more apparent. 

What’s pharmacare and why should it matter to breast cancer patients?

It’s just the start of 2019 but we’re already thinking about fall and the federal election it brings with it. Last year, there was a lot of talk about the establishment of a national pharmacare plan. The federal government assembled a working group to study the best way a system like this would work in Canada.

10 low-key ways to make Valentine’s Day better when you have breast cancer

February is here, which means Valentine’s Day is around the corner. Valentine’s is a day that you either love or hate. And throwing the C-word into the mix can make it hard even when it’s something you’re usually excited for.

I Am And I Will this World Cancer Day

World Cancer Day on February 4th gives us a chance to reflect on 2018, the work we’ve accomplished and the work that still needs to be done. This year, WCD has a brand-new message: I Am And I Will.

My beautiful baby saved my life

I remember sitting in the small room waiting for the doctor to come in.  I was nervous but didn’t think anything was wrong.  The doctor came in and asked how I was.  I gave my usual cheery response that everything was good but added that “it depended on what he was going to tell me…ha ha ha”.  I laughed but my jovial manner quickly subsided when my doctor sat down and the words “it’s not good” came out.  My heart dropped.  He then said, “It’s cancer”.  My heart dropped again.

Meet Cathy Hemeon, CBCN’s new board member

The Canadian Breast Cancer Network is pleased to welcome a new member to our board of directors.  Cathy Hemeon of Mount Pearl, Newfoundland brings many years of experience in the health care field to her new role.  She, like all CBCN board members, is also a breast cancer survivor.  She was diagnosed in February 2016 with Stage I triple positive breast cancer following a screening MRI.

7 interesting highlights from the 2018 San Antonio Breast Cancer Symposium

Last month, we had the opportunity to attend the 2018 San Antonio Breast Cancer Symposium (SABCS). Here’s some of the key highlights to come out of the conference. 

Looking on the bright side

In June 2015, I moved to London, Ontario and was recovering from a rather emotional and difficult time, having divorced in June 2014.  I had moved from Sault Ste. Marie to be closer to my daughter with her husband and very young children.  I would be seeing the rest of my family less often now – my parents, my two sisters, my daughter and her husband, and another granddaughter. and two step grandchildren.

A patient’s perspective on MedSearch

Tell us a little bit about yourself, where you’re from, and your experience with breast cancer.

Q&A with ODANO on how they can help you access drug coverage

Last month, we connected with Alan from ODANO, the Oncology Drug Access Navigators of Ontario, to answer a few questions about who they are and how they help patients in Ontario access life-saving medications.

Here’s how we’re helping breast cancer patients through your donations

Giving Tuesday is coming up on November 27th and we wanted to take this opportunity to highlight some of the amazing work Canadians have done to support the Canadian Breast Cancer Network. The Annual Pink Ribbons Project Gala hosted by the Full Circle Foundation for Wellness is a perfect example of community involvement shaping CBCN’s valuable resources.

Living flat is freedom

My name is Alison Thompson and I was diagnosed with breast cancer five years ago.  To give you some background, my mother was diagnosed with breast cancer about 15 years ago.  Her cancer was an aggressive form. It spread to her spine and brain, and she passed away about three years after the initial diagnosis. 

Finding Harmony after Breast Reconstruction

I was forty years old, running a successful business, comfortable in my finances, and feeling ready to settle down and start a family. Suddenly, a breast cancer diagnosis upended my sense of contentment and sent me on a journey of chemotherapy, immunotherapy, hormone therapy, a preventative double mastectomy, and, ultimately, reconstructive surgery.

SurgeryGuide is much-needed

For Andrea Sveinbjornson of Regina, the Canadian Breast Cancer Network’s new SurgeryGuide is an invaluable tool, one that she wishes she had when she had to make decisions about breast surgery in 2016.

Could a simple blood test help detect breast cancer?

That’s what Dr. Majumder and her team of researchers at Brandon University in Manitoba are hoping to find out. Dr. Majumder, Assistant Professor in Cancer Genetics and Cell Biology, is screening blood plasma from breast cancer patients and patients who don’t have breast cancer to determine if there is a blood biomarker like micro RNA (miRNA) that could potentially tell us when breast cancer is present or growing in a person.

Living with inflammatory breast cancer

In August 2014 I found a lump in my left breast. This is unusual for inflammatory breast cancer (IBC), a rare and very aggressive cancer where cancer blocks the lymph vessels.

SurgeryGuide: Helping you understand your surgical options

We all know how integral surgery is for the treatment of breast cancer. It’s usually the first step in treating early stages of the disease which means it can come quickly after diagnosis. The time when you’re still processing your diagnosis is also the time when you’re making some of the most important decisions about your treatment. Trying to make these decisions while learning this new, complicated language called cancer doesn’t make those decisions any easier.

A rare triple negative case

Typically Stage IV triple negative breast cancer metastasizes to the bones, lungs, liver, and brain; however, mine is not in any of my organs. Mine was only in the left breast, both axillary lymph nodes, two on the left side of my neck, as well as two spots on my chest wall near the lung.

Understanding the Lived Experience of Breast Cancer

No person truly understands what it’s like to be diagnosed with breast cancer until it happens to them. It can be terrifying and overwhelming and can take physical and psychological tolls on a person’s body. 1 in every 8 Canadian women will hear the words “You have breast cancer” in her lifetime and 5,000 Canadians die from metastatic breast cancer each year. That means 26,000+ women every year have to live through surgery, chemo, radiation and side effects like fatigue, depression, chemo brain, and nausea, all while balancing their work and home life. Understanding the lived experience of a diagnosis like this is imperative to improving support for patients, survivors and their families.