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The Voice of People With Breast Cancer

Education

Our Voices Blog


Tag : metastatic breast cancer

Highlights from ASCO 2023

The 2023 American Society of Clinical Oncology (ASCO) annual meeting was held from June 2 to 6. CBCN was pleased to be able to attend and participate in the many interesting and groundbreaking research that was shared at ASCO this year. Below, we present a few highlights and takeaways from this year’s conference.

Show Me the Money. Five Ways You Can Receive Financial Support

When I was diagnosed with breast cancer, I had no idea how hard it would be. Not the surgery, I’ve had major surgery before, so I wasn’t afraid of being put under anesthetic and being operated on. Mentally, I was focused on one sole factor, survival, so my head space at the time was very clear and didn’t allow for any other emotions or thoughts. Realityfear, anxiety, hope…that all came later.

Addressing the Healthcare Needs of Indigenous Populations

June 21, 2023 is National Indigenous Peoples Day. This is a day for all Canadians to recognize and celebrate the unique heritage, diverse cultures and contributions of First Nations, Inuit, and Métis peoples. This is also a day that should call to attention the various issues that Indigenous peoples continue to face, including racism, colonialism, and disparate health outcomes from much of the rest of Canada. Broad determinates of health like geography, accessibility and availability of services, and cultural differences contribute to the challenges faced by Indigenous peoples.

Reason #5 Cancer Still Sucks: Radiation Therapy is Hit or Miss

The fifth reason that cancer still sucks is that although radiation therapy can be an effective cancer treatment, it may fail to kill some of the tumor cells in its path, or it may miss some tumor cells completely. In addition, while “palliative” radiotherapy can dramatically improve symptoms in some individuals with incurable cancers, it may have minimal impact or provide only very brief relief to others.

“Mommy Has Cancer”: The Most Difficult Conversation to Have

In February 2019, five days after my birthday, I found a tiny, split pea lump in my right breast. I immediately went to my GP, who sent me for a mammogram and ultrasound. The first available appointment was the following week. The mammogram went “squishingly” and then I was shuffled off for my ultrasound. Afterwards, the technician told me they needed to review the images with the radiologist to make sure they had everything they needed. I didn’t really think twice about it as that seemed to be the normal practice during my pregnancy.

I Am a Mother with Cancer

I am a metastatic breast cancer patient with liver and spine metastases. I am also a mom and a grandmother. One day, I felt a very hard pea-sized lump right under the skin. My family physician sent me for a mammogram and ultrasound. The radiologist came in and said he was concerned and brought me back the following day for a biopsy. I was diagnosed with invasive ductal carcinoma. I was petrified and scared. Since working at a cancer centre, I had every bad scenario going through my mind. I had a double mastectomy followed by four months of chemotherapy and seven weeks of radiation. It was difficult losing my hair, feeling nauseous and weak but I was determined to beat this horrible disease.

We Asked You About Chemotherapy Side Effects

Experiencing side effects from breast cancer treatment is a common occurrence for patients. While systemic chemotherapy, radiation, and targeted therapy are effective treatments for breast cancer, learning to cope and live with their unwanted or unexpected side effects can be challenging. We reached out to breast cancer patients to hear about their experiences with this.

I Don’t Look Sick: My Life with MBC

I have advanced stage 4 Metastatic Breast Cancer (MBC). MBC is when breast cancer has spread to other parts of the body. Typically, it spreads to the bones, liver, lungs, and brain. There is currently no cure for MBC but there is treatment, and some women can live for many years.

I Only Wanted One Surgery, So I Chose AFC Reconstruction

This year 28,000 women in Canada will be diagnosed with breast cancer. On March 10, 2022, I became one of those women. Disturbingly, within a month of my diagnosis, two more of my close friends received their breast cancer diagnoses. In total, I have 15 close friends and counting who are either breast cancer survivors, or who are currently battling breast cancer. This silent epidemic seems to be growing at an extraordinary pace.

Highlights From the 2022 San Antonio Breast Cancer Symposium (SABCS)

The San Antonio Breast Cancer Symposium (SABCS) is the annual breast cancer conference that brings together researchers, clinicians, patients and manufacturers from all over the world to discuss the latest breast cancer research. Last December, we were pleased to be able to attend in-person, and we'd like to share with you the highlights from SABCS.

Our Top Blog Posts for 2022

The past year allowed us a return to a more normal routine in a lot of ways, and our blogs from 2022 reflect that. Posts about being able to gather for the holidays, get mastectomy tattoos, and having in-person healthcare visits were some of the topics of our top 10 blog posts from last year.

2022: Our Year in Review

CBCN connects patients, caregivers, health care professionals, researchers, public health agencies and industry stakeholders to improve knowledge translation and promote optimal health outcomes for Canadians with breast cancer. We do this through the promotion of information sharing, education, and advocacy activities. As we look forward to the new year, we would also like to look back on 2022 and share what CBCN has achieved on behalf of Canadian breast cancer patients, their loved ones, and caregivers.

FinNav Five: Experiences, Services, And Travel Assistance

Depending on your situation, your financial needs can come in different forms, from needing money to pay for rent, to needing help with paying for treatments, to requiring help with parking costs when you go for cancer treatments. To highlight the various types of programs listed in FinancialNavigator, we have put together this blogpost series.

We Are Not Counted

I am writing this from my hospital bed. One of many cancer-related hospital stays and visits. This hospital has become my second home. Fortunately, it’s a great hospital. That doesn’t mean I want to spend a lot of time here though. But that is inevitable when you have metastatic breast cancer, otherwise known as mBC. That is Stage IV cancer. Cancer that has travelled outside the breast and has metastasized into other areas of the body. 

I Can Create My Reality

I read a lot. About everything, really, including Jackie Collins’ Hollywood Wives, which I’m about three decades late on, I know, but I just watched Lady Boss, The Jackie Collins Story on Netflix so here I am. The book is good too, in a dishy fantastical way, so naturally after 15 pages in I went back online and bought the sequel Hollywood Wives: The New Generation. But, that’s not the kind of reading I want to share. Books about the power of the mind, self-esteem, and mental health and how to create a positive reality are what I’m referring to. I like these types of books and have piles of them, because I honestly believe they work. I just wish I’d fallen back on them when I was initially diagnosed with breast cancer and going through surgery and treatment.

History of the BRCA 1 & 2 Genes

Before it was known that genes could be linked to various cancers, 1970s research focused largely on viruses and their role in the development of cancer. With the knowledge that family history had an impact on cancer risk, Mary-Claire King, an American geneticist, began to theorize possibilities beyond viruses and started her mission in identifying the cause of breast cancer running in families.

Breast Cancer Care for Lesbian and Bisexual Women

Who you are and where you live can greatly impact your access to care, and sexual orientation is no exception to this. Within the healthcare system, the LGBTQ+ community regularly experiences barriers when seeking adequate health services, and the effect of these barriers may result in poorer health outcomes. This leads to the question — does being a lesbian or bisexual woman affect your risk for breast cancer?

Losses from mBC: Vision and Fertility

Five years ago, 2017, I had what I thought would be my last CT scan at the BC Cancer Agency. I was done. I busted out of there as if I was free, even though I had a mild concern about a weird, ongoing burp and GERD symptom. I was told this was anxiety and waited for the results thinking I would graduate from cancer world. This was the assumption from my medical team and something I thought could be true since it had been five and a half years since my early-stage diagnosis. Even though the fear of recurrence existed, I held strong like my oncologist did.

Considering a Mastectomy Tattoo? Here’s What You Need to Know

Following breast cancer surgery, there are a variety of options available to you. You may choose to live flat, have breast reconstruction, get implants, or use breast prostheses. Another option that you may have not considered or known about are mastectomy tattoos. Women who have gotten mastectomy tattoos following their breast cancer treatment have given a variety of reasons for getting them, including that they are a confidence boost following treatment, to cover scars, to create something beautiful, and to mark what they’ve been through.

Questions and Experts Session Guide: A Genetic Counsellor Answers Questions about Genetics and Genetic Testing

In today’s post, we provide the questions that were sent in and asked during the live session of our Questions and Experts session held in June 2022. In this session, Rachel Mador-House, a certified Genetic Counsellor, answered questions about genetics and genetic testing. In the parentheses, you’ll find the timestamp of where to find the question in the on-demand video.