Last year, we wrote a blogpost on the importance of advocating for yourself as someone with breast cancer. We also shared tips on how to go about becoming an advocate and being a part of your healthcare team. While the information shared is valuable and reflects situations you may find yourself in, we believe that the best way to learn is to hear from people who have been there already.
Increasingly, the not-for-profit advocacy world has been questioned regarding industry funding. Many critics believe that any organization that receives funding from the pharmaceutical industry is automatically biased, but this ignores the great pains that health charities often go through to remain unbiased, ethical, and credible. And it certainly does not reflect the patient-centric approach that CBCN takes.
Living through breast cancer is a challenging journey. You will be searching for answers and information about the disease and its treatment; trying to understand how to live positively, and simply reckoning with what your future may look like.
If you are at high risk for developing breast cancer because of family history or because you have the BRCA1 or BRCA2 gene mutation, you have several preventative treatments to consider. These options include close surveillance, chemoprevention, and prophylactic mastectomy, with or without breast reconstruction.
When the COVID-19 pandemic was first declared in March 2019, there was a lack of information about the virus. As time went on and more and more research was conducted, we were able to learn more about how the virus worked, who it was infecting, its symptoms and more. One of the pieces of information from this research was that cancer patients were more likely to have adverse outcomes if diagnosed. Although there was not enough evidence to pinpoint which cancers made individuals more susceptible or enough research to definitively say whether past and present patients had the same concerns, the few findings were enough to label individuals diagnosed with cancer as high-risk. Of course, one’s risk level is dependent on many different factors and varies from person to person.
The goal of World Lymphedema Day is to make cures for lymphedema and lymphatic diseases a global priority. It is an annual awareness event with participation in many countries around the world. The Lymphedema Association of Ontario (LAO) has committed to improving the lives of people living with lymphedema since it began in 1996 and has become a more dynamic organization in the last year. World Lymphedema Day offers us an opportunity to continue our advocacy and awareness work. LAO partners with hospitals, our professional members, and patients to bring attention to lymphedema in Ontario.
My oldest son is 17. Then 14, and 10- and 6-year-old twins. While I don’t claim to be any kind of parenting expert, I’ve had enough experience now to know a thing or two.
February 4th is recognized as World Cancer Day, a global initiative led by the Union for International Cancer Control (UICC) that is focused on awareness, education and action. The goal of this day is to create a world where death from cancer is preventable and where everyone can access proper care and life-saving treatment.
The San Antonio Breast Cancer Symposium is the annual breast cancer conference that brings together researchers, clinicians, patients and manufacturers from all over the world to discuss the latest breast cancer research. While the 2020 symposium was held virtually, there was still an incredible amount of new research shared.
While Canada has a universal healthcare system, this system does not universally cover prescription drugs, nor does it address out-pocket-costs that many, including breast cancer patients, face when they navigate our healthcare system. Every country that has a universal healthcare system also has universal prescription drug coverage – every country but Canada. This results in unequal access to treatment based on a variety of factors, such as where a person lives, the type of insurance they have, their age, their income, and more. To address this, many have suggested implementing national pharmacare – a universal drug coverage system that is publicly funded. We’ve written on pharmacare in the past, on what it is and why it should matter to breast cancer patients and on where Canada’s federal parties stand on pharmacare.
2020 was eventful, to say the least. It was a year where many had to shift and pivot from their everyday normal. Appointments were cancelled, surgeries were delayed and rescheduled, and patients found themselves having to access their doctors and healthcare team through a screen. Breast cancer patients had to not only worry about their risk of contracting the COVID-19 virus, but they also had to maintain their cancer care as best they could, something that was a challenge both mentally and physically.
As the year slowly winds down, we look back on some of the many activities and projects that CBCN has participated in, developed, or updated. These efforts reflect our ongoing commitment to that ensure that the voice and perspectives of breast cancer patients are reflected in the work that we do.
The Merriam-Webster dictionary defines ‘advocate’ as a verb that means “to support or argue for”. ‘Self-advocacy is defined as “the action of representing oneself or one's views or interests”. While the word, advocate might make us think of protests or political signs, that is not always the case. As someone with a breast cancer diagnosis, self-advocacy and being an advocate simply means being a part of your health care team. It means knowing yourself and speaking up for yourself to make sure that your cancer care needs are met. Self-advocacy is part of participatory medicine where “patients are actively working alongside their physicians to choose the best course of cancer treatment.”
Research on breast cancer, and more specifically, metastatic breast cancer (mBC), is critical in helping us better understand this disease. While widespread knowledge of mBC is still limited, there are studies that look specifically at the detection, prognosis and treatment of this type of breast cancer. Similarly, clinical trials on metastatic breast cancer are crucial in helping researchers improve the current standard of care. Below are some of the latest research and some currently recruiting clinical trials on metastatic breast cancer.
Planning a funeral, especially if it’s your own, might be one of the most painful and challenging tasks that any of us will have to complete. The very idea can be overwhelming, anxiety causing and heartbreaking to even think about. That being said, so many people share that while they dreaded the idea of having to plan their own funeral, they often experienced a tremendous sense of peace and the feeling of having a huge weight lifted off their shoulders after completing this process. Since the period after the death of a loved one is incredibly distressing to families, pre-planning a funeral can relieve them of some of the stress and can also give you peace of mind that your wishes are being carried out.
Scanxiety may not officially be a real word, but the feelings it brings about are real. Very Well Health defines scanxiety as the term used to “describe the anxiety people with cancer feel while waiting for scans”. Regardless of whether the scans are for diagnostic purposes, monitoring treatment, checking recurrence or as a check-up, individuals can experience apprehension before, during, and while waiting for the results of their scans. The apprehension and fear that is felt can range from feeling claustrophobic in the scan machine to imagining the worst-case scenario of the scan results. Many people experience scanxiety so it is important to learn coping techniques that help eliminate the anxiety.
Cancer does not discriminate. It's an often-repeated phrase, used to highlight the prevalence of cancer. The idea behind it is that whether you are young, old, poor, rich, Black, White, we all face an equal risk of being diagnosed with cancer. Unfortunately, like many other aspects of our society, cancer does in fact discriminate. Below we provide 10 research findings on breast cancer specifically that highlight the unequal nature of a breast cancer diagnosis. These studies highlight that breast cancer affects social groups differently and while some of this difference is due to the insidious nature of cancer itself, some of these findings are due to systemic and societal inequalities that become highlighted when we look at health.
Indigenous Traditional Healing is a holistic practice that aims to treat imbalances in a person’s body, mind, emotions, and spirit together.These imbalances are thought to be the cause of illness and to result from ignoring sacred, natural laws. Tradition healing practices are distinct and culturally specific to the people who are practicing them. In Canada, First Nations, Inuit, and Métis view health as a balance of physical, emotional, mental and spiritual elements. These four elements can be impacted by the individual, their family, their community and the environment. For example, connection to the land is an important aspect of healing for the Inuit. Being out on the land and away from one’s community can bring calmness to the body and mind by removing outside influences and in turn promote personal well-being.
As with most other events planned for this year, the ASCO 2020 Conference was rescheduled as a virtual event, originally set to be held in Chicago from May 29th to 31st. The American Society of Clinical Oncology (ASCO) Conference is a key research conference that brings together clinicians, researchers, and patient advocates from around the world. The conference included over 5,000 abstracts, posters, slides and videos, a day of video broadcasts and around 147 virtual exhibits. While we weren’t able to come together in person this year, ASCO successfully hosted a virtual conference that shared an incredible amount of research that’s relevant to breast cancer patients. Below are some of the highlights.
Individuals diagnosed with cancer have been identified as being at a high-risk of getting seriously ill if they get COVID-19. Data from various studies show that the type of cancer, the stage, the person’s age, health, and other factors contribute to how high-risk a patient may be. In addition to this, the type of treatment a person is receiving and how long their last treatment was, can all impact their outcome. At the same time, a few studies have shown that breast cancer patients fare better, compared to patients with other types of cancers.