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The Voice of People With Breast Cancer

Education

Our Voices Blog


Contributor : CBCN Team

A Palpable Mass

So, we could begin like all meeting group sessions do:

— Hi, hello. My name is Rebecca, I'm 37 and I have breast cancer.

— Hello Rebecca.

We could. Yeah.

Pharmacare 2019: Where do Canada’s federal parties stand on a national drug access plan?

Timely access to medications is a key concern for any breast cancer patient, but drug access in Canada has long been a minefield to navigate. Inequitable access to medications across provinces, drug shortages and long wait times to access new treatments are just some of the issues patients and their families routinely encounter in their quest for treatment. National Pharmacare-a plan to reimburse prescription medications in a similar fashion as our healthcare system-has often been proposed as a solution to many of the drug access issues that Canadians currently experience. While Pharmacare has been debated nationally for a long time, it is only recently that the idea has gained real traction and momentum.

Lived experience sets research priorities for breast reconstruction

According to breast cancer survivor Cathy Hemeon of Mount Pearl, Newfoundland, “Breast cancer patients offer up the best lived experiences and advice in terms of what the priorities should be for research.”  Cathy, a CBCN board member, was therefore very pleased to participate in a national meeting that brought together Canadian patients, caregivers, and clinicians to set the top 10 priorities for research on post-mastectomy breast reconstruction. 

Talking Palliative Care Part 2: Choosing your care

We can all agree that when it comes to making end of life decisions, comfort is one of the most important considerations. Comfort can mean different things to everyone. Staying at home for as long as possible or until death may be preferred by some people while others may feel more comfortable in a facility. If you’re unsure of what will make you most comfortable here are some things to consider. 

Physical therapy vs Occupational therapy: What’s the difference?

Rehabilitation is an important aspect when recovering from or living well with breast cancer. Physical therapy (PT) and occupational therapy (OT) are terms we often hear when discussing rehabilitation, but we can sometimes confuse their true meanings. 

Talking Palliative Care Part 1: Symptom management and getting the most out of your palliative care team

The thing to know about palliative care is that you don’t actually need to be at end of life to get the benefits of it. Palliative care is about getting the best quality of life while living with a life-limiting diagnosis. Symptom management and maintaining your emotional well-being are key aspects in palliative care treatment.

An app that helps you during your treatment and beyond

Self-care during treatment is so important for maintaining not only a good quality of life but your sanity as well. From doctors appointments, to managing the emotional aspects of a breast cancer diagnosis, there’s a lot to juggle. We’re excited to announce our new partnership with Self Care Catalysts and our Health Storylines mobile app.

Genetic testing: the benefits, the risks, and the latest knowledge

According to Genetics Home Reference, “Genetic testing is a type of medical test that identifies changes in chromosomes, genes, or proteins. The results of a genetic test can confirm or rule out a suspected genetic condition or help determine a person’s chance of developing or passing on a genetic disorder.

Seven progressive steps to appeal a denied insurance claim

You have the stress of a breast cancer diagnosis, and now your insurance company has denied your claim.  Hang in there: you don’t have to accept the insurance company’s initial decision as the final word.  You can appeal your denied claim by following these seven steps.

Here’s what you need to know about the federal government’s Implementation of National Pharmacare report

On June 12th, the Advisory Council on the Implementation of National Pharmacare released their final report looking at the implementation of a national program to address the inequities that Canadians currently face when it comes to drug access. It outlines 60 recommendations, steps to implementation and key details on things like co-pay, budget costs, strategy for rare diseases, and impacts on patients and providers. Below, we’ve summarized these key details for you to better understand how this new plan for pharmacare would impact you and your family. 

Guided meditation at home

A few weeks ago, we discussed mind-body therapies to help relieve some of the emotional and physical side effects of cancer and treatment. This week we are sharing some guided meditations you can do in the comfort of your home.

Research Updates from ASCO 2019

There’s always interesting research updates released at the American Society of Clinical Oncology Conference – here’s what you need to know. 

Post-surgery tips from women who’ve been there

Simply put, surgery is awful. Your body is recovering from some major trauma. And if you were feeling rather healthy before surgery, afterwards can feel a bit like a train wreck. We asked women for their tips on making recovery a little more bearable.

Relieving the emotional and physical toll of breast cancer through mind-body practices

Breast cancer treatment affects more than just your body. It can take an incredible toll on your emotional well-being as well. You likely have a ton of anxiety about your treatments, and how it will affect your life moving forward. If you’re a mom, you’ve got to worry about how this will affect your kids and your family. A demanding job or the needed income is another added level of stress that can make a huge impact. Add all of this to the physical symptoms of treatment, like joint pain, it’s an understatement to say that it’s hard.

5 interesting breast cancer research highlights

We’re sharing some interesting research results that we seen in the news recently. 

What to do if you have textured implants and are worried about their links to lymphoma

We’ve been hearing a lot of discussion in the news lately about textured implants and their link to a rare form of lymphoma; a cancer now known as breast implant-associated anaplastic large cell lymphoma (BIA-ALCL). Recently, Health Canada moved to suspend these implants from being used in Canada.  

New clinical trials finder helps you find a trial

Are you looking for a clinical trial but not sure how to start or where to go? A new Clinical Trials Finder has been developed by Clinical Trials Ontario (CTO) to help you. You can search for a clinical trial in any province or territory in Canada, using only a few simple search terms.

The Importance of Vitamins in Our Daily Diets

Vitamins are tiny organic compounds with a massive impact on your general health and well-being. Vitamins can be obtained from your daily diet, or they can be sourced from the sun (only vitamin D). More so, they have a say in almost each and every aspect of the digestive system. The best part is that as essential as they are, your body only requires them in small amounts.

Caregiving while you’re a patient

Women living with breast cancer are not just cancer patients; they’re moms, spouses, sisters, friends, and daughters. The many roles and responsibilities a woman assumes to support those around her don’t disappear when she is diagnosed with cancer. One of these responsibilities may be caring for aging parents or family members. This burden may seem heavy at times but there are places you can turn to for support.  Check out the following resources.

Our new white paper: what are patients and physicians saying about biosimilars in breast cancer?

We talked a lot on this blog last year about biosimilars; what they are and why it’s important to know about them. With the entry of biosimilars in the breast cancer treatment landscape due later this year, there are still questions and discussions about how it will affect current and future breast cancer patients. To help understand these questions and perspectives, we decided it was important to bring together those people who are impacted the most: patients and physicians.