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The Voice of People With Breast Cancer

Education

Our Voices Blog


Top 10 priorities for metastatic breast cancer research

It’s powerful what happens when patients, caregivers, and clinicians come together to look at research priorities; a broad list of questions that encompasses a variety of viewpoints emerges.

Constipation – A hard truth

Poop, definitely a topic that most of us don’t want to have candid conversations about, especially when it comes to our own. But constipation is one of the most common side effects of many cancer treatments, and can be a real pain in the a**, literally.

Clinical Trials – 101

Clinical trials play a big role in the discovery of new treatments for cancer. They help to determine the safety and effectiveness of potential new treatments. For metastatic patients, they can also potentially offer additional treatment options after the cancer has grown resistant to the standards of care.

The importance of knowing you have dense breasts

I went for my regularly scheduled mammogram in April 2014. The notice I received for my mammogram stated that I was to be screened annually because I had 'dense breast tissue’. This was the first time I had heard that term. When I went for my mammogram in Regina, I told the tech that my letter stated that I had 'dense breast tissue’. After the mammogram, she looked at the images and said yes, “dense breasts.” I had no idea what this meant for me, but I was to find out soon.

Research Roundup: April

Here are some highlights from the latest in breast cancer research:

Nerve damage is a little-known side effect of radiation

About 10 years ago, Charlotte Pennell was pruning bushes in her garden in Winnipeg. One branch seemed especially tough to cut. Then she looked down and saw that she was cutting her finger. She was horrified that she had so little feeling in her hand.

The flying trapeze artist: Hanging in thin air, waiting for the rest of my life to begin

For Jenn Abbott, finishing treatment for breast cancer is like a flying trapeze.  Having received her “NED” (no evidence of disease), she is in mid-air, no longer holding on to the bar that represents the medical team that saved her life, while at the same time, not yet catching the second bar that represents the rest of her life after cancer.  She is in limbo, facing post-traumatic stress disorder brought on by her cancer treatment which included five surgeries and a severe adverse reaction to chemotherapy that meant she had to stay in the hospital for two weeks. She feels PTSD after cancer treatment is real.

Surviving breast cancer and living with lymphedema

January 4, 2010, I became a fly on the wall.  I was at my surgeon’s getting results from my biopsy.  It was supposed to be a quick appointment as the initial needle test of fluid prior to the biopsy was negative for cancer, or so we thought.  I remember hearing the doctor telling me “unfortunately it was cancer….” I felt like I was having an out of body experience. I was there but literally watching over my body and the doctor from a distance.  My world suddenly changed both physically and mentally.