Having radiation treatment is something you can never truly be emotionally ready for. At least I wasn’t. The doctors shared the basic need-to-know information, but the rest felt vague, unknown and definitely out of my control. Of course I Googled radiation treatment and what to expect, but again, something was missing. Where was the insider insight I desperately wanted? Rationally, I knew there would never be a guide tailored to my breast cancer experience, everyone experiences it differently as treatment is unique to your cancer and your body. But after the surgery, after I was told I had Stage 1 cancer, after my lump was sent to California for Oncotype DX testing to determine whether or not it would spread, have the likelihood of a recurrence and what my best treatment plan should be, it was my turn. And I always wished there was a checklist I could refer to or a step-by-step action plan I could walk to make my journey into the unknown a little better. There wasn’t, so I’m sharing what I’ve learned along the way so that if you need this insight or know someone else who may, it is here for you.

Five years ago, I went into a doctor’s office and walked into a storm. I was diagnosed with breast cancer.

I know you remember the moment you heard, “You have breast cancer”. Those words began a long journey with many possible roadblocks and detours. You will all be at different points on your cancer timeline. Perhaps you have just been diagnosed, are continuing with treatment, or even managing a reoccurrence. Because each of you is more than a statistic, your journey will be unique. The path to follow must be the one that is right for you. At each turn, you will be faced with many hard decisions. You certainly did not choose this challenge, but it is now in front of you. Deciding what is important, how you want to live, and setting your priorities are some of the many demands of this disease. The challenge is how do you want to move forward towards healing which is finding your wholeness and balance. Cure is the absence of physical disease. Everyone hopes for a cure. Even if you cannot achieve a cure, you can and must seek your definition of healing.

It all started in July 2021. A drop of bloody nipple discharge led me down the rabbit hole of Google and WebMD which, for once, was actually reassuring - it’s usually harmless. I scheduled an appointment with my doctor the following day who shared the same sentiment – it is probably nothing, but I will refer you to a breast clinic just in case. As a 30-year-old with no family history of breast cancer and a couple of benign fibroadenomas, I wasn’t too worried, and neither was my Surgical Oncologist initially; the odds were in my favour, it was likely benign. And so I attended my ultrasound, mammogram, and biopsy appointments – each time observing how the other women in the waiting room were decades older than me.

When we hear stories about people’s experiences receiving a diagnosis like breast cancer, we often hear the empowering message to trust your gut and get a second opinion if the answers aren’t sitting well with you. These messages, while meant to be inspiring, can often feel impractical. In other countries, like the US, getting second opinions may be fairly straightforward, but in Canada, second opinions may be a bit trickier to come by.  

I’ll never forget the day I looked in the bathroom mirror and saw a face that resembled mine, except that it looked ten years older, staring back at me. And no, it wasn’t the cloudy, moth-eaten Lululemon sweater I only ever took off on laundry day, bad lighting, months-long fatigue or even my emotions playing tricks with my eyes. This was real. So much so that not even Kylie or Rihanna could help me, despite being the Holy Grails of Millennial beauty. Biologically I was still be the same age, but my skin? An extra decade’s worth of fine lines, crow’s feet, dark under eye circles and cheek sag had all but literally wiped out my formerly tight, collagen-plump and rosy glow.

Have you ever found yourself confused and wondering what all those scientific terms mean in the research studies we share on breast cancer? If so, we’ve compiled a list of common terms used in various breast cancer news articles to help explain how they are used in determining the results and progress of clinical trials and research.

Joycelyn Merkley, from Shelburne, Ontario, describes herself as: a girlfriend, mother, grandmother, sister, and daughter. She has lived 53 years embracing these roles when in July of 2021 she was thrown into another role: breast cancer patient.

This World Cancer Day, the focus is on how to ‘Close the Care Gap’. It is a call for everyone to not only become aware of the inequities that exist in cancer care, but to get actively involved in addressing and reducing such inequities. These inequities can be due to systemic and social barriers, as well as general access to care. While such gaps exist, they can be reduced and eventually eliminated. Below, we outline what CBCN is doing to close the breast cancer care gap and what you can do too.

The only thing I miss about Tamoxifen is not getting my period.