Put your hand up if the thought of being screened for breast cancer never crossed your mind until you or your doctor found a lump in your breast or armpit? I’m literally holding my left arm up in the air right now, as I type this. Crazy isn’t it, that we don’t think to have the girls checked to make sure they’re healthy until something goes wrong or until someone we know has been diagnosed with breast cancer.

My cancer journey began when I noticed my right breast leaking. I honestly chalked it up to a hormone imbalance and thought nothing of it until six months later, when the leaking had not subsided, and my breast had become very itchy. During this time, I had also noticed how tired and fatigued I was every day. I found myself napping a lot and needing that nap to just make it through the day. I decided that I better make a doctor’s appointment to see what was going on with my body.

I hadn't been feeling well in December of 2021. My family physician was not taking me seriously, so my husband intervened. He insisted on a full work up with all of the necessary tests. I don't know where I would be if my husband had not stepped in when he did. Tests were ordered and a mammogram was scheduled but not until March of 2022.

I grew up as the daughter of a mother who battled lymphoma for 10 grueling years, only to be taken away by leukemia in the end. As a teenager, I accompanied her through this harrowing journey, unaware that I was accumulating PTSD along the way. Health and wellness became my fixation, a supposed guarantee against cancer. But this obsession was rooted in fear – fear so profound that I avoided having children, terrified of subjecting them to the horrors I witnessed with my mother's treatments.

Because I’m a born and raised Canadian, I just assumed I would have access to all sorts of free testing and screening when I found the hard, pea-sized lump in my right armpit. Not so much. Here’s how my breast cancer-screening steps went.

I was shocked to learn I had breast cancer. My previous mammograms had never showed anything. I noticed that one of my nipples was inverted which sent me to my family doctor. I was then referred to the Breast Health Clinic in Ottawa on an urgent basis where I had tests done and was informed I had advanced invasive lobular breast cancer.

I’m still scared and I’m still nervous, but I’m okay. I’m finding a sense of peace and calmness in all of this chaos. These past 42 days have been life changing. Being diagnosed and the end of a relationship has really tested my ability to find acceptance in everything. I continue to smile and laugh; life is truly incredible. The universe works in ways that I’ll never fully understand and in the darkest moments there is still light to be found.

Well, the results are in.

Take a seat.

Take a deep breath.

It’s positive.

In today’s post, we provide the questions that were sent in and asked during the live session of our Questions and Experts session held in April 2022. In this session, Dr. Jean Seely, Head of the Breast Imaging Section at the Ottawa Hospital, answered questions about breast screening and imaging after breast cancer. In the parentheses, you’ll find the timestamp of where to find the question in the on-demand video. Read our Screening AFTER Breast Cancer Advocacy Guide to learn more about follow-up surveillance for those who have had breast cancer and to learn how to advocate to access the appropriate testing.

It all started in July 2021. A drop of bloody nipple discharge led me down the rabbit hole of Google and WebMD which, for once, was actually reassuring - it’s usually harmless. I scheduled an appointment with my doctor the following day who shared the same sentiment – it is probably nothing, but I will refer you to a breast clinic just in case. As a 30-year-old with no family history of breast cancer and a couple of benign fibroadenomas, I wasn’t too worried, and neither was my Surgical Oncologist initially; the odds were in my favour, it was likely benign. And so I attended my ultrasound, mammogram, and biopsy appointments – each time observing how the other women in the waiting room were decades older than me.

A little more than two months ago, I started having weird pains in my right breast. It’s a throbbing sensation that radiates from the right side of my breast all the way to my nipple and then beneath my breast. Sometimes it happens when my arm leans into my breast, other times when I move my entire arm and once in a while, from the impact of my bra resting against my breast. Touching the area with my hands only intensifies the pain and since I seem to have zero impulse control, I find myself pressing into these spots all the time to check if the pain is still there. It is.

I’m writing this as a PSA for all women. We’re always told to check for lumps and to get mammograms. However, Paget’s disease of the breast is a breast cancer that until October, I had never heard about.

I would have never thought that I would be telling my story to a large group of people but today I consider it an honour.

So, we could begin like all meeting group sessions do:

— Hi, hello. My name is Rebecca, I'm 37 and I have breast cancer.

— Hello Rebecca.

We could. Yeah.

The Canadian Breast Cancer Network is pleased to welcome a new member to our board of directors.  Cathy Hemeon of Mount Pearl, Newfoundland brings many years of experience in the health care field to her new role.  She, like all CBCN board members, is also a breast cancer survivor.  She was diagnosed in February 2016 with Stage I triple positive breast cancer following a screening MRI.

Dense breasts are common in Canadian women, affecting about 3.4 million women. Having dense breasts makes it harder to detect cancer on a mammogram yet women are not being told.

I went for my regularly scheduled mammogram in April 2014. The notice I received for my mammogram stated that I was to be screened annually because I had 'dense breast tissue’. This was the first time I had heard that term. When I went for my mammogram in Regina, I told the tech that my letter stated that I had 'dense breast tissue’. After the mammogram, she looked at the images and said yes, “dense breasts.” I had no idea what this meant for me, but I was to find out soon.

Roughly 40% of Canadian women, meaning about 3 million women, have what is known as “dense breasts.” Dense breasts are normal and common, but they also pose cancer risks and screening challenges. Breast density can have a significant impact on cancer detection and the treatment and prognosis of a diagnosed cancer. Many women in Canada are unaware of their breast density, impacting their screening and their ability to be their own breast health advocate. Why is knowing and understanding your breast density so important?