It all started in July 2021. A drop of bloody nipple discharge led me down the rabbit hole of Google and WebMD which, for once, was actually reassuring - it’s usually harmless. I scheduled an appointment with my doctor the following day who shared the same sentiment – it is probably nothing, but I will refer you to a breast clinic just in case. As a 30-year-old with no family history of breast cancer and a couple of benign fibroadenomas, I wasn’t too worried, and neither was my Surgical Oncologist initially; the odds were in my favour, it was likely benign. And so I attended my ultrasound, mammogram, and biopsy appointments – each time observing how the other women in the waiting room were decades older than me.

A genetic counsellor is a health care professional with specialized education, training, and experience in medical genetics and counselling. Genetic counsellors work with both individuals and families that have a medical, family history, or potential risk for an inherited condition. The role of a genetic counsellor is to identify families at risk for genetic conditions, provide information and supportive counselling, coordinate and review testing options, and connect patients/families with appropriate community resources.

In October 2013, Allegra Kawa of Edmonton had surgery to remove both her breasts.  She’s also considering surgery to remove her ovaries and uterus.