For me, hearing these words felt like I was falling into a deep pit that I had no way of crawling out of. My diagnosis wasn’t something I could negotiate or talk my way out of either—two things I am fairly good at. This lack of control and inability to change my situation hit me hard. I had to accept that cancer was my new reality, and this filled me with fear. The feelings that followed oscillated between depression and anxiety—and they weren’t fleeting.

One night in July 2015, I went to sleep, and everything was fine. When I woke up, it was obvious that everything was not fine. My left breast was swollen, inflamed and painful. I was shocked and worried but tried not to overreact. Then I started making excuses. Maybe my period was coming. Maybe it was cellulitis. Maybe it was a clogged milk duct. Maybe it was. Maybe it. Maybe …

Experiencing a breast cancer diagnosis is overwhelming and while the overall physical impacts of the disease are well-known, the mental health impacts are often less discussed. The shock of being diagnosed, the fear of recurrence, and the anxiety that comes with living with a breast cancer diagnosis, among other mental health effects, are not considered. As far as the public knows, breast cancer is a physical disease that lasts only as long as its treatment. However, we know that is nowhere near the truth. To highlight this, we asked community members to comment on what impact their breast cancer diagnosis and experience has ha or continues to have on their mental health.

For Jenn Abbott, finishing treatment for breast cancer is like a flying trapeze.  Having received her “NED” (no evidence of disease), she is in mid-air, no longer holding on to the bar that represents the medical team that saved her life, while at the same time, not yet catching the second bar that represents the rest of her life after cancer.  She is in limbo, facing post-traumatic stress disorder brought on by her cancer treatment which included five surgeries and a severe adverse reaction to chemotherapy that meant she had to stay in the hospital for two weeks. She feels PTSD after cancer treatment is real.

If you’re a breast cancer patient who’s experiencing significant depression or anxiety, you’re not alone. Roughly one-quarter of breast cancer patients get help for anxiety or depression during their treatment. There are many reasons a person may feel anxious or depressed because of their cancer diagnosis.