2020 was eventful, to say the least. It was a year where many had to shift and pivot from their everyday normal. Appointments were cancelled, surgeries were delayed and rescheduled, and patients found themselves having to access their doctors and healthcare team through a screen. Breast cancer patients had to not only worry about their risk of contracting the COVID-19 virus, but they also had to maintain their cancer care as best they could, something that was a challenge both mentally and physically.

I’m a talker. I like to communicate and sometimes, okay often, I’m an over-sharer. I need to know what’s going on and why and in my version of yin and yang, I believe that because I’m an open book everyone else will be too. Except, not so much.

As the year slowly winds down, we look back on some of the many activities and projects that CBCN has participated in, developed, or updated. These efforts reflect our ongoing commitment to that ensure that the voice and perspectives of breast cancer patients are reflected in the work that we do.

October is Breast Cancer Awareness Month and each year, we see a surge of individuals, companies, and organizations joining the conversation to raise awareness of breast cancer. Amid the ongoing COVID-19 pandemic, people and organizations participated in virtual events, used their social media to raise awareness, and donated to various breast cancer organizations.

Recently, after spending eight hours with abdominal pain so intense I was doubled over, I conceded to my sister Liz, who insisted a trip to the hospital was necessary and crawled downstairs, ordered an Uber, pulled a patterned facemask over my nose and mouth and went. Twelve hours, three hits of morphine and one magnetic resonance imaging (MRI) scan of my lower abdominal organs later, the emergency room doctor told me a lesion on the right side of my liver was the culprit. Based on the scans I’d had taken of my major organs prior to my breast cancer surgery, the lesion was new and potentially the result of the original tumor and/or the treatment I’d received post-operation. An ultrasound followed, revealing the lesion’s 5cm length by 5cm depth by 5cm width. A second MRI has been scheduled.

Some breast cancer patients who had a mastectomy have reported feeling painful and non-painful sensations in the area of the breast that was removed. This condition, known as phantom breast syndrome (PBS), usually start in the first year after a mastectomy. Sensations due to PBS usually occur in the chest, armpit, surgical scar, and inner arm and last far beyond the expected time for post-surgical pain. The prevalence of PBS is not exactly known, most likely due to a lack of reporting as patients either feel like it is not that big of a deal or because they find it hard to describe. PBS has been reported to affect anywhere between 4% to 56% patients; other studies report that it affects anywhere between 10% to 55% of women.

I am a 51-year-old woman from the Loire Valley. I live near Orléans, 120 kilometres south of Paris. I grew up surrounded by women. I am the youngest of five sisters; twenty years separate me from my oldest sister and ten years separate me from the fourth one. Our mother received her breast cancer diagnosis in 1985 and at the time, cancer care was awful. My father died from a cardiac arrest in July 1986, probably caused by grief. My mother was brave and fought as much as she could, but she passed away in May of 1989 when I was 20 years old. Because of her breast cancer diagnosis, my sisters and I have closely monitored our risk of developing breast cancer.

When you have a cut or an injury, blood clots are useful in stopping the bleeding in order to help your body heal. However, there can be a negative side to blood clots. If a blood clot develops in a vein, which is called a venous thromboembolism (VTE) or venous thrombosis, or if it develops in a deep vein, which is called a deep vein thrombosis (DVT), there may be cause for concern.

Sex may be something that isn’t frequently discussed by doctors or oncologists or even friends, but the sexual changes and adjustments you go through following a breast cancer diagnosis can be enormous for you and your partner, depending on how big a part it was in your life before diagnosis and treatments.

Lymphedema is abnormal swelling of the arms, hands, breast, or torso. Breast cancer-related lymphedema generally occurs when the lymph nodes or the lymphatic vessels are damaged or removed following breast cancer treatment. When this happens, blockage in the lymphatic system prevents lymph fluid from properly draining which is what leads to the swelling.