Giving Voice to Canadians Concerned About Breast Cancer


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Research Study: Clinical Trial Participation in Breast Cancer

We are conducting an online survey with breast cancer patients and family members about their attitudes towards health research and participation in clinical trials. This work is in collaboration with the Canadian Breast Cancer Network, The Ottawa Hospital, and Clinical Trials Ontario.

As you may know, development of new treatments for breast cancer involves a lot of clinical research, often including large-scale clinical trials that involve the participation of hundreds or thousands of patients. Rates of participation in these important studies has been declining for years, and we are trying to understand the range of factors that people consider when deciding whether or not to participate.

We are conducting an online survey of breast cancer patients and family members about this issue. Given your experience with breast cancer, we’d like to invite you to participate in this online survey. This survey will ask questions about your knowledge of clinical trials, as well as what you think are the most important barriers and drivers to participation in clinical trials. We estimate that the survey will take approximately 15-20 minutes to complete.

Thank you for considering our request. The attached participant informed consent form provides more details about the study.

If you are interested in participating, please click on the link below.

If you have any questions, please don’t hesitate to contact Dr. Jamie Brehaut at (613) 737-8899 ext. 73820 or via email at You can also contact the research coordinator, Kelly Carroll at (613) 737-8899 ext. 73824 or via email at

Jamie C. Brehaut, PhD

Senior Scientist, Clinical Epidemiology Program, Ottawa Hospital Research Institute

Susan Marlin

President and CEO, Clinical Trials Ontario

Cathy Ammendolea

Board of Directors Chair
Canadian Breast Cancer Network (CBCN)



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